Last week was very busy. Bruce had an MRI and we saw the neuro oncologist (NO). Last month he began what they call 5/23. He takes Temodar for five days straight. That is followed by 23 days off. Temodar is chemo in pill form. After what oncologists call the SOC (standard of care), patients then…
I visited my doctor last week. After my exam we talked. She asked how I am doing. She knows my world has turned dark. I shared with her my coping mechanisms. Calm, a motivational site on Instagram, has been most helpful. A quick burst of cheer and positivity, it also offers thinking messages. I’m rereading…
A couple of weeks ago I was asked this question by a well-meaning acquaintance in the grocery store. The question came after I told him Bruce had surgery. I didn’t mention there were two, that twice they’ve cut into my husband’s skull. He cares. People care. I understand this. What ISN’T understood is that glioblastoma…
Shortly after Thanksgiving, I deactivated my FB account. I could not post, share, or like anything, anymore. I could not engage in other social forums, either. I do not disrespect those who do; my choice is not about people who share there. This is about me and me only. People behave according to what is…
Last evening I noticed that Bruce’s right pupil was larger than the left. With a history of A-Fib and two recent brain surgeries, I went on high alert. With a recent history of chemo, radiation, dexamethasone, Keppra, Mepron, and his regular heart medicine, who knows what is causing what. Just when I have the routine…
Two mornings ago, during the wee hours, Bruce noticed a “mushy” area on the top of his head, along the latest scar. “Radiation induced swelling” is very real, and can express itself in various ways. Is this one of them? Why one month post-surgery? Once he got out of bed, the swelling went away. Until…
finding merle 