The glioblastoma wife-3

Last evening I noticed that Bruce’s right pupil was larger than the left.

With a history of A-Fib and two recent brain surgeries, I went on high alert.

With a recent history of chemo, radiation, dexamethasone, Keppra, Mepron, and his regular heart medicine, who knows what is causing what. Just when I have the routine down, the medicine or dose changes.

For the next two hours, my hands shook and my heart rate rose, a lot.

I called both the neurosurgeon (NS) and the neuro oncologist (NO). After the requisite two hours of phone tag, we were told that as long as Bruce had no other symptoms, this was probably not a concern.

I asked both offices, “Do you typically see enlarged pupils with radiation?” Both said no. While necessary to treat cancer of the brain, a host of side effects can arise, long after the treatment stops. It is different for each person.

Bruce did not have a headache, and there is no history of seizures. There was no blurred vision or pain.  He had no other symptoms, and I was told that if there was a new assault or trauma to the brain, there would be a sign.

Conclusion: This was likely radiation induced edema resulting in pressure on the optic nerve. (Isn’t this what I asked?! Never mind; I’ll take it.)

WHEEEEEEEW!!!!!

Late last night, both pupils were the same. I made him promise to wake me during the night if he felt any unusual symptoms.

I took Trazodone before bed.


Early today (at 4:30 a.m.), Bruce got up to head to the pool; both eyes were the same.

When he returned from the pool, they were still the same.

YES, you read that correctly: Bruce went for a swim!

I’d be a rich woman if I had a dollar for every time Bruce asked the nurses or doctors–he probably asked everyone who walked by his room in the hospital–when he could get back to the pool.

IMG_20180520_094910452_HDR

Adair Village, Oregon

Each time I checked his eyes today–he’ll tell you I was “gazing”–the pupils were normal.

He’s been swimming several days a week for the past 35 years; being out of the pool during these past four months has been difficult for him. Today was his first day back.

He has been running errands all day, working, and he seems full of energy.

The pool was a good thing, and reconnecting with the early bird, pool gang.

Today was the first day since September that Bruce was up and able and working most of the day. It’s 3:47, and he just came in. To nap.

I’ll take it.

swimming-in-the-poolBlessings, and thank you for reading. ❤

  7 comments for “The glioblastoma wife-3

  1. January 8, 2019 at 3:12 pm

    Good to hear there is some normal back in life. Keeping good thoughts.

    Liked by 1 person

    • January 14, 2019 at 9:28 am

      Hi, Marlene. It’s a “new normal,” and one which I have to get used to. It constantly changes, too, which brings a strong element of fear. But, this is our life, and we try to find the funny wherever we can. Have a great day!

      Liked by 1 person

  2. January 8, 2019 at 12:10 pm

    I am glad that you are chronicling the actual experiences. Know that I am glad for the victories and with you in the setbacks. Great picture of the kids.

    Liked by 1 person

    • January 14, 2019 at 9:24 am

      Thank you, Elizabeth. Part of me wants to chronicle this for the kids, partly for me, and right now if it may help other people. Your kind words are very much appreciated. ❤ How do you like our pool?

      Liked by 1 person

  3. Lynne Olson
    January 8, 2019 at 10:11 am

    one day at a time… keep it simple, its all you can do

    Liked by 1 person

    • January 14, 2019 at 9:23 am

      Yep; that is exactly it, and keep breathing. ❤

      Like

Please share your thoughts:

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: