The glioblastoma wife-5

As with most things in life, we often find good and bad.

Today will be about the good.

When I share my feelings about our new situation, I know it can be hard for you to read.

So many people do not know what to say, and I completely understand. I do.

While we hope to help others by sharing Bruce’s story, writing is also my therapy.

Today’s post will not be difficult to read.

Yesterday, we rode the wave of optimism.

I crashed today, but only due to sheer relief. Emotions are really heavy.

Bruce’s MRI results were wonderful; he had an excellent response to the treatment.

The “tumor bed” where the tumor was located shrank by at least half.

(Hmmmm. Is it shrink, shrank, or shrunk? Shrinked? I had to look it up.)

This means normal, healthy brain tissue can now wiggle its way back to its original position.

There is no more pressure on the brain, and no evidence of a “brain bleed.”

The scan looked “normal.”

There is no evidence of any new growth, or migration of previous spots.

The radiation oncologist (RO) told us about one spot he’s been watching since October.

Since then, the spot grew. It was pretty small before, but on Friday’s MRI, it had grown.

We were prepared for just this phenomenon. The RO called it “pseudo progression.”

This means that the spot grew as a result of the treatmentย but then died. This is called “radiation necrosis.” Necrosis means tissue death.

I specifically asked him if he was concerned at all about this spot. Without a pause, he said emphatically “no.”

I specifically asked him what dies when they talk about necrosis. He said “tumor.”

We see the neuro oncologist (NO) tomorrow; he’s the doctor in charge of Bruce’s treatment from here on out.

He will likely review the next steps, meaning Phase 3 of treatment. Phase 1 was surgery, radiation and chemo, and Phase 2 was a one month break after treatment stops.


I’m really, really tired.

I am also unbelievably happy.

cropped-mt-henry_photos-from-heidi_july-29-2017.jpg

At the top of Mt. Henry, Montana, summer 2017

Life. Is. Good.


Blessings and thank you for reading. โค

  16 comments for “The glioblastoma wife-5

  1. February 5, 2019 at 5:40 pm

    Rest as much as you can. It’s important. Glad there is good news of sorts.

    Liked by 1 person

    • February 6, 2019 at 10:56 am

      Yep, we are enjoying the good news of the week. He started the higher dose of chemo two nights ago and so far, he’s had no adverse reaction. I am so thankful. โค

      Liked by 1 person

  2. February 3, 2019 at 2:43 pm

    may you both experience
    well being & loving support ๐Ÿ™‚

    Liked by 1 person

    • February 4, 2019 at 2:34 pm

      Thank you so much. I sure enjoy your blog. The photos are wonderful. Thanks for stopping by. ๐Ÿ™‚

      Liked by 1 person

  3. January 30, 2019 at 6:02 pm

    I’m glad you are getting some good news!

    Liked by 1 person

    • February 1, 2019 at 12:50 pm

      It was VERY good. We’ll take it. ๐Ÿ™‚ Have a great weekend, Ann.

      Like

  4. Susan
    January 29, 2019 at 5:35 pm

    I am so happy over the results. Life is truly Good. Hope tomorrow is as good as today.

    Liked by 1 person

    • February 1, 2019 at 12:49 pm

      Yes, the appointment with the neuro oncologist was equally good. It is hard listening to all that this involves, but we remain optimistic. โค

      Like

  5. Lynne Olson
    January 29, 2019 at 2:04 pm

    absolutely wonderful…. blessings to you all…. its a good day

    Liked by 1 person

    • February 1, 2019 at 12:48 pm

      Yes, it was and is a very fabulous feeling. โค

      Like

  6. Amy
    January 29, 2019 at 2:04 pm

    So glad to see you feeling happy.

    Liked by 1 person

    • February 1, 2019 at 12:47 pm

      Thanks, Amy. It is something not felt in a while, but there ARE moments to be thankful for, even happy for, and I am keeping my eyes peeled for every single one. โค

      Liked by 1 person

  7. January 29, 2019 at 11:59 am

    Those ups and downs are exhausting. Please continue to take excellent care of yourself and keep loving on your husband.

    Liked by 1 person

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