The glioblastoma wife–2

Two mornings ago, during the wee hours, Bruce noticed a “mushy” area on the top of his head, along the latest scar.

“Radiation induced swelling” is very real, and can express itself in various ways.  Is this one of them? Why one month post-surgery?

Once he got out of bed, the swelling went away. Until the next night and this morning. It is back. And again, it left–once he was up and about.

He sent notice to his oncology care team. They replied that unless it is red or oozing, it’s OK.

He drove us both into town on Thursday.

On Friday, he drove into town by himself and had the tires replaced on the car.

He stopped at Rite-Aid and Wilco.

He picked up Celexa for me. I took the first one yesterday. I am already taking Trazodone but I skipped it last night because my heart began to race, a lot. Trazodone already has this effect. Tonight, no Celexa but yes Trazodone.

I did not sleep well last night.

The rash on my face comes and goes. Some days it is pretty red.

We are on a first name basis with the pharmacists.


Yesterday was a very good day.

My friend and her son–a “charge” of my husband’s when the boys were in scouts and Bruce was the leader–came to visit. The son lives in Costa Rica and had not seen Bruce in a long time. Our families met when our sons were in kindergarten together.

There was laughter. There were hugs.

Bruce’s childhood friend called him last evening. They laughed. It was a good chat.

My cousin sent me a mug that, in part, reads, “Life is good.” She’s right.

family_mug_spBruce is finished with the Mepron. It is the consistency of paint and tastes about as bad. It cost us $399 for a two week dose.

His taste buds are returning. He can now taste blueberries. And scrambled eggs. Those are his favorites.

He no longer needs the cane. His balance issues are gone.

I am learning to breathe.

Some days he’s full of energy. That makes him smile.

Some days he naps, more than once. That makes me smile; his body needs the rest.

We talk. Our eyes lock when we share a smile.

We can face this together.

Nothing else matters. ❤

IMG_20181122_142145054When I asked them to turn around for the photo, three of them turned around.

The sense of humor is intact!

It is indeed a good day to have a good day.

Blessings and thank you for reading. ❤

  10 comments for “The glioblastoma wife–2

  1. January 12, 2019 at 7:46 am

    Hang in there. It’s all you can do. Maybe nap too. 😉 Sleep is always the hard part. Keeping good thoughts for you.

    Liked by 1 person

    • January 14, 2019 at 9:30 am

      Sleep is helped with Trazodone. Right now, without it, I don’t sleep. Keep breathing and find the good parts of each day…because they are there. ❤

      Liked by 2 people

      • February 9, 2019 at 11:13 am

        Well said, Karenlee. This is tough and your attitude, ideas, and balance (helping get sleep when you otherwise wouldn’t) are all great. Wishing you all well!

        Liked by 1 person

        • February 9, 2019 at 11:43 am

          Thank you, Lahla. It’s the hardest thing I or we have ever faced. I’ll take all the help I can get. I wish you the very best as well. Positive thoughts are coming your way. 🙂

          Liked by 1 person

  2. January 7, 2019 at 5:14 pm

    thanks for sharing your story with us. And I’m so glad that there are still times when you can smile and laugh!

    Liked by 1 person

    • January 14, 2019 at 9:22 am

      Thank you, Ann. I’ll include soon about Bruce’s Drive By Appointment. Too funny. 🙂 Have a great day!

      Like

  3. Lynne Olson
    January 7, 2019 at 9:17 am

    May many blessings come to you this day…. and tomorrow…. and tomorrow….. and forward…

    Liked by 1 person

  4. January 6, 2019 at 12:21 pm

    This will pass away too. Your courage is all I have got to know throughout the read.
    Good things are waiting for you and all the good wishes & prayers! 💓

    Liked by 1 person

    • January 6, 2019 at 12:31 pm

      Thank you very much for your kind words. Yes, there will be sunnier days ahead; for now, we plow ahead with everything we have. My best wishes to you, too. ❤

      Like

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